"Ice Bucket Challenge" to elicit donations for finding a cure for Amyotrophic Lateral Sclerosis (ALS - Lou Gehrig's Disease). I've seen the moving story on ESPN about the gutsy baseball star (Pete Frates) from Boston College who initiated the whole movement. I pray that the almost 1000% increase in donations to the ALS Association as a result of this "Ice Bucket Challenge" phenomenon will accelerate the finding of a cure that cannot come too soon.
ALS is a heartbreaking, debilitating, evil disease. I know this because I've been watching my father-in-law suffer with it for almost 8 years now. I hate ALS.
But I hate the willful and selfish destruction of innocent human beings more.
The "Ice Bucket Challenge" has become a cultural phenomenon that only the modern social media monster could create. But those who engage in it need to know that the ALS Association's search for a cure includes their own unapologetic support for Embryonic Stem Cell Research (ESCR). Stem cells offer an exciting area of research that may prove to lead to the most powerful cures for some of the most horrendous diseases mankind faces. But we all need to distinguish betweens Stem Cell Research and Embryonic Stem Cell Research. When it comes to ethics and how we all value human life, the differences between them couldn't be more stark.
I and others at the Life Training Institute have written about the failures and ethical issues surrounding ESCR before (here, here, here, here, and here among other places). The moral issue centers on only one thing: From what source do you derive the stem cells? ESCR destroys frozen or cloned embryos of a small, defenseless human beings for the benefit of others. The simple fact is that the clinical promise and moral superiority of adult stem cell and induced pluripotent stem cells (IPSC) over ESCR is undeniable and avoids the destruction of innocent human beings. We don't have to resort to barbarism to seek a cure for diseases.
So, what to do?
You can begin by reading a short news story on "What's Wrong With The Ice Bucket Challenge?" It gives a short overview of the issue and a couple of solutions:
1) There is an alternative research group that does not engage in ESCR, the John Paul II Medical Research Institute. Feel free to dump a bucket of ice water on your head if you are so-inclined, but then send your money to an institute that respects the value of human life at all stages.
2) Alternatively, if you want to donate to the ALS Association anyway, include with your donation a stipulation that your funds are not permitted to be used in any ESCR program. The Association's Chief Communications and Marketing Officer, Carrie Munk, has made a public commitment that they will not use your funds to support ESCR if you do so.
To be fair, the ALS Association does support a wide array of alternative research programs. I don't want to disparage an organization that is doing so much to try to find a cure for ALS. But please, if you choose option 2), do so with great trepidation because Ms. Munk also claims that "under very strict guidelines, The Association may fund embryonic stem cell research in the future." Seeing that there are no "very strict guidelines" that are strict enough to allow for the destruction of innocent human beings, this doesn't seem like an acceptable risk to take.
Let's end ALS, but let's end it the right way.